Mind 'for hire', campaigner, sculptor
Phil Booth coordinates medConfidential, which campaigns for confidentiality and consent in health and social care, seeking to ensure that every flow and use of data within and around the NHS and wider care system is consensual, safe and transparent.
Founded in 2013, medConfidential works with patients and medics, service users and care professionals; drawing advice from networks of experts, and partnering with related campaigns across the UK and around the world.
Phil previously led NO2ID from 2004-2011, campaigning successfully to defeat the introduction of ID cards and other ‘database state’ initiatives. His work as an advocate has been recognised by awards from Privacy International (2008) and Liberty (2010).
What piece of work are you most proud of?
I guess it might amuse some in the audience to know I’m a sculptor, and I’m probably most proud of the fact that they’ve not all been fingerprinted, had all their details put onto a giant Home Office database, and made to have an ID card…
What would you add to our survival kit for the future?
If everyone building systems ensures that they handled people’s data in a consensual (or, where consent cannot work, just and fair), safe and transparent way then we might survive (into) the future!